Foundation system

3rd Annual FSR Summit Aims to Boost Patient-Caregiver Relationships | The Sarcoidosis Research Foundation will host an online event July 30-31

Following the success of its virtual event last year, the Foundation for Sarcoidosis Research (FSR) is preparing to once again host an online summit for everyone affected by sarcoidosis.

The “Third Annual Virtual Global Patient Summit: Unveiling the Possibilities” is scheduled for July 30-31.

Billed as the world’s largest virtual event for sarcoidosis patients, the summit focuses on strengthening connections, sharing experiences and expertise, and identifying new resources for people with systemic disorders. immune systems and their caregivers.

“This extraordinary global event gives us the opportunity to bring together patients, caregivers, clinicians, corporations and non-profit partners to explore up-to-date research, clinical practice and living with sarcoidosis,” Mary McGowan, CEO of FSR, said in a press release. “This year, we are proud to have even more engagement from partner clinics and hospitals, as we provide stimulating networking opportunities.”

recommended reading

For the first time, the summit will be presented in English and Spanish, and live Spanish translations will be available.

A limited number of scholarships will be provided by the foundation for participants who would not otherwise be able to attend. Applications are open during early bird registration, until July 8 or until all scholarships have been awarded.

To attend the summit, patients and supporters have until July 26 to register. The summit is also open to clinicians and industry partners.

The summit will continue to take place on the same user-friendly virtual platform that was used in 2021. It allows participants to customize their agenda according to their interests.

The platform will open its “virtual doors” four days before the start of the summit, allowing participants to familiarize themselves with it and start networking. Access to the platform will be available until September 20, allowing attendees to review and re-watch any session.

On the agenda are four plenary sessions, including “Uncovering the Possibilities: What’s Next for FSR and the Future of Better Care and Finding a Cure” and “Gastric Sarcoidosis and Treatment-Related Gastric Symptoms”. Attendees can also tune in for “Life Hacks: Get insights and tools to live your best life with sarcoidosis from this dynamic panel of patients and supporters.”

Finally, the summit will feature a Q&A session with sarcoidosis GPs.

Additionally, the agenda includes “powerful breakout sessions,” which will cover topics such as anti-inflammatory diets and fatigue management. Another session will discuss how to manage finances when living with a chronic illness.

During the networking and chat sessions, attendees will be able to log into chat rooms based on topics of interest. Each day will be punctuated by one-hour “Coffee Break” sessions dedicated to supporters and caregivers.

The discussion sessions will include a ‘Discussion of Impossible Choices: Living on Steroids’, as well as a session on how to communicate with healthcare professionals, titled ‘Lost in Translation: A Discussion on Communicating with Your health care team”. A final topic is devoted to supporters and caregivers, in a session titled “Secure Your Own Mask Before Helping Others: A Discussion for Supporters and Caregivers”.