Foundation system

Spotlight on the Triple Negative Breast Cancer Foundation

When Nancy Block-Zenna, 35, was diagnosed with triple-negative breast cancer and her insurance didn’t cover the cost of her care, a few of her closest friends responded by selling beach towels. They hoped to raise awareness and funds to help Nancy get treatment.

From these beach towels – adorned with a heart, a peace sign and a pink ribbon – the “Peace Love and a Cure” campaign was born. Word quickly spread from the campaign’s origins in Long Island to the rest of New York, New Jersey and Florida, where Nancy’s family and other friends had heard of her plight and wanted to help by raising funds themselves.

Nancy’s insurance company eventually agreed to pay for her chemotherapy, and with the money her friends earned, they founded the Triple Negative Breast Cancer (TNBC) Foundation in 2006.

“Her friends rallied around her because there was nothing for her at the time,” says Ricki Fairley, trustee of the TNBC Foundation and 10-year TNBC survivor. “No one really knew what triple negative was. We didn’t have good doctors, good treatments – we’re getting treatments now almost 20 years later.

Almost three years after her diagnosis, Nancy passed away, having to say goodbye to her family – including her baby girl, Jolie – and all the friends who supported her through her diagnosis and treatment.

Today, the TNBC Foundation serves as a community of support for those diagnosed with TNBC, as well as an educational resource about the disease. The organization continues to raise funds to help fund research into TNBC in hopes that one day a cure will be found.

Their objective Fairley says the organization aims to act as a major resource for TNBC patients, survivors and their families.

“We want to be the refuge,” says Fairley. “When you are diagnosed, we are the source of all the information.”

Services they provide According to Fairley, one of the things the TNBC Foundation offers members of its community are connections to online discussion groups made up of others diagnosed with TNBC. With these chat groups, which are active 24/7, you can ask questions about treatments, side effects, and just about anything related to your diagnosis.

“I remember waking up during my first chemo at four in the morning, having this bone pain, thinking, ‘Oh my God, my cancer has reached my bones,'” Fairley says. wasn’t going to reach my doctor at 4 a.m., so I went to the focus groups and they were like, ‘Ricki, you’re fine. Take a Tylenol and go to bed.

In addition to 24/7 discussion forums, the organization hosts “Metastatic Monday,” a support group for people diagnosed with metastatic TNBC, held on the first Monday of each month. , plus another support group meeting on the first Tuesday of every month for all patients with TNBC.

You can also connect with other community members through the foundation’s Facebook page.

Events Each year, the TNBC Foundation celebrates TNBC Awareness Day, which falls on March 3. It’s one of their biggest fundraising days of the year, Fairley says, and this year the foundation is putting 100% of the donations it receives during the month’s Walk to Fund Research on the TNBC. The foundation will also be hosting several virtual events throughout the month.

The foundation hosts another annual fundraiser, “No One Fights Alone,” held this year on May 25, as well as webinars on a variety of TNBC-related topics throughout the year. You can find recordings of their past webinars and other upcoming events on their website.

Currency “No one fights alone.”

“We want people to feel like they have arms wrapped around them,” Fairley says. “That they have a place to go, that they have a support system, that they have love, information and resources.”