The IMF is proud to announce that the myeloma community has gone above and beyond when it comes to taking action and making a difference for myeloma. Despite the pandemic and an ongoing conflict in Ukrainethe global community came together to participate in the Myeloma Action Month movement— with more than 30 million people in 46 countries reached around the world.
IMF President and CEO and 26-year myeloma survivor, Yelak Biru, is truly thrilled with the success of this year’s myeloma month of action: “Throughout myeloma month of this year, the MFI focused on encouraging engagement through the theme, #MYelomaACTION. Each of us has a role to play in advancing the art and science of cancer care in general, for better outcomes for myeloma in particular.”
In 2009, the IMF launched March as Myeloma Awareness Month to shed light on this little-known cancer. In 2016, the organization elevated the campaign to Myeloma Action Month, with the added goal of encouraging individuals and groups to take action that positively impacts the myeloma community.
This year, Myeloma Action Month focused on ACT TO MAKE A DIFFERENCE. Participants in this year’s campaign were able to join the movement by uploading photos of the chosen action to the Myeloma Action Month website, using the hashtag #MYelomaACTION, and sharing their “action” photos on Twitter, Instagram, Facebook and LinkedIn. To further raise awareness of the disease, the Myeloma Action Month website also featured 31 IMF facts and statistics on myeloma.
Forty-six countries joined the #MYelomaACTION movement this year, with Myeloma Action Month social badges and infographics translated into more than 12 international languages. Individuals and groups shared their actions, messages and photos around the world.
Here are some of the highlights of this year’s Myeloma Action Month:
- For 31 days, the Myeloma Action Month Advent Calendar was filled with inspiring messages about the actions members of the myeloma community are taking to bring attention to the disease while encouraging others to share their own actions.
- Myeloma Action Month was declared in Hamilton County, Tennessee and in Walker County, Georgia
- The IMF Support Group team presented virtually and provided technical support to 80 support groups during the month of March, with updates and resources from the IMF.
- Regional Director of IMF Support Groups, Kelley Sidorowicz, has created audio-guided meditations and yoga videos for people with myeloma. These interactive programs are available for free on the Mind and Body Experience website.
- The participation of the sponsors exceeded expectations thanks to their active engagement on social media.
- In Chinaa series of lectures on myeloma were produced and were available for viewing in real time and as replay videos.
- In hong konga program introducing myeloma to the public was produced and broadcast locally.
- In South Korea, a series of events were held throughout Myeloma Action Month. The Korea Blood Diseases and Cancer Association (KBDCA) produced a video in which patients asked Dr. Ki-hyun Kim from the Korea Multiple Myeloma Working Group (KMMWP) various questions related to multiple myeloma treatments . The KBDCA also produced a collection of online videos, which featured myeloma patients in various themes. The videos are available on YouTube via the KBDCA channel.
- In ItalyAssociazione Italiana contro le Leucemie, linfomi e mieloma Onlus (AIL) — an organization that works to raise awareness about blood diseases — held a webinar for patients on March 28.
Thanks to the kind and generous contributions of individuals and groups, the IMF is thrilled to announce that Myeloma Month of Action 2022 has made a huge difference by creating a powerful mosaic of activities for every patient, caregiver, nurse, physician and myeloma advocate – thereby building hope, understanding and collective resilience in the myeloma community.
The IMF is grateful to the following Platinum sponsors for their support of Myeloma Action Month: 2seventy bio, Amgen, Binding Site, Bristol Myers Squibb, GSK, Janssen Pharmaceutical Companies of Johnson & Johnson, Karyopharm Therapeutics, Pfizer, Regeneron, Sanofi and Takeda Oncology.
ABOUT MULTIPLE MYELOMA
Multiple myeloma is a cancer of the plasma cells of the bone marrow, that is to say the white blood cells which produce antibodies. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are often multiple patches or areas in the bone where it grows. It can appear as both a tumor and/or an area of bone loss, and it affects the places where the bone marrow is active in an adult: the hollow area in the bones of the spine, skull, pelvis, rib cage and the areas around the shoulders and hips.
ABOUT THE INTERNATIONAL MYELOMA FOUNDATION
Founded in 1990, the International Myeloma Foundation (IMF) is the world’s first and largest foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries around the world. The IMF is dedicated to improving the quality of life of patients with myeloma while working towards prevention and a cure by focusing on four key areas: research, education, support and advocacy. The IMF has hosted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001 established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative®, a groundbreaking research project aimed at curing myeloma. IMF can be reached at (800) 452-CURE (2873). The worldwide website is www.myeloma.org.
Follow the IMF on:
LinkedIn: International Myeloma Foundation
818-487-7455 ext. 261
SOURCE International Myeloma Foundation